Latest Brain Tumour Update

So as I said before, I had that MRI+GAD test a couple of weeks ago and this past week was my appointment with the neurologist to find out all the details, and I did.

Apparently my brain tumour is not benign, it’s malignant. From what I’ve read about that, that just says malignant brain tumours are brain cancer, but for some reason I can’t think that I’ve actually got brain cancer, I’m just thinking I’ve got a bad tumour.

Anyway, what I found out is that they were now going to have to drill into my head in order to do a biopsy. One reason they were going to have to do this was because they showed me the pics for the first MRI – my brain there – and the second, and in the second one my brain tumour had grown. I could even see it, so I believed him.

So next Wednesday comes the drill sergeant and I’m hoping that I don’t end up with some big, big headache after the anesthetic fades out.

They were telling me that after the biopsy they’d be arranging radiation and chemotherapy and I don’t know the timing on that but they already asked me if I had long-term disability at work. I’m almost finished with the short-term they told me I had, the long-term isn’t thrilling me cuz I feel for sure they’ll want to get rid of me, and how many jobs will I be able to get after that where I’m old plus I’ll have to tell them about my medical situation in case anything happens to me or I have to go for more of whatever.

I’m also a little worried that since they’ll have to cut into my temporal lobe, that could affect my memory, my vision, my understanding. Hate to think I won’t be able to do anything on my computer cuz I won’t be able to remember any of my passwords.

So that’s the latest brain tumour news. I suppose if I can still speak english after my drill job, I’ll write another update cuz I imagine they’ll need to tell me the next stuff to do – or maybe not, maybe they’ll have to wait til those biopsy results, however long those results take.

If you’re interested in the symptoms of a temporal lobe tumour, feel free to check out http://www.livestrong.com/article/225695-temporal-lobe-tumor-symptoms/ – I certainly have visited that and another few hundred websites to find out about me. Me, me, me, I’m so selfish.

Why is Rogers Wireless Retarded?

Rogers WirelessI called Rogers today because I was looking at my epost bill. On the front page it told me that my wireless account was $93 and I wondered why, so I looked at the ‘view details’ page and it showed me that it was $75 after taxes.

So I called them to say what’s going on, what is this $20 difference, even though I’d overpaid that bill when I had paid it and I was in credit for my next bill.

I talked to a woman who wasn’t quite getting it right. I had signed up for the data sharing plan with Rogers because I wanted to be able to use my mobile rocket stick (which I probably haven’t used for a year or more) and my iPad (which I seldom use) and my iPhone (which I use now and then) together without paying ridiculous amounts for products I hardly ever use.

My understanding was that all three of these products would be shared on the one account and I had no problem with the fact that it would cost me about $75 after taxes each month. So what was the almost $20 difference?

This woman I talked to had a pile of different explanations, including telling me that it was costing me an extra $16.92 a month for my mobile stick. I would try to ask her questions when it sounded silent but then she would talk again and I wasn’t getting the answer. She explained to me as well that the mobile stick was costing me an extra $10 a month, even though she’d told me that it was $16.92, and I couldn’t grasp WTF she was saying when it was all different.

I kept asking questions, she was sounding hostile. I told her that she was sounding aggressive and she told me I was too, even though I wasn’t, I was just asking questions. Then she told me I was talking over her, but the only time I was asking questions was when it sounded like she was silent – maybe she wasn’t, maybe she was in a different city and there was a time lapse taking the call, I dunno cuz I wasn’t talking while she was talking.

My bottom line question was really, why was she saying I was paying extra for the stick when I signed up for this plan where they told me that all my items would be in the same data sharing plan. Otherwise WyTF would I be signing up for it if everything wasn’t covered?

Then she told me how the stick wasn’t Apple like my iPhone and iPad and so it was separate. Again I don’t know WTF is going on because signing up for this plan, nobody told me that only Apple products could be on the same plan.

It was ridiculous, I figured I’d check with sales to see what they had to say about the data sharing plan and asked her to transfer me. She said sure (probably was happy to not be talking to me) but then it seemed like I was holding for a while so I figured she just tried to put me on hold for hours because she was pissed off.

I hung up and phoned again to the Sales department, which I wasn’t on hold to connect to and started talking to a guy who asked for my birthday and my postal code. He told me I gave him the wrong birthday so I said my birthday again. He told me it was wrong.

I asked him if they still had that January birthday on file which they told me about a few years ago and I told them it was wrong and that guy said he’d revise it. I don’t know if that came from a computer error they had, but I certainly never gave them my birthday in January.

He told me that I could go to a Rogers store and provide ID for them to change my birthday. So he couldn’t talk to me. I asked him if he was serious. Was I supposed to make a special trip to Rogers because they had somehow screwed up my account after being a Rogers customer for I don’t know how many years, 20?

He said that I had to go to the store, he wasn’t going to talk to me. I won’t even dwell on the first woman who gave me some phone number that I said ‘what’ to because it wasn’t my number and then said to me that I was talking about my father’s account.

I guess after I have the bead guy coming to show me stuff today, I will then be going over to Rogers (for fuck’s sake) and seeing that they somehow update my birthday to the right one so that I can actually find out some information about my Rogers account now.

WTF is new

Yes, I’m hardly ever writing here any more. That’s probably cuz I’m so busy writing 140-letter twitter updates. Go ahead and try to write something that’s only 140 letters, that’s work. In the meantime, I have all those Facebook games to play. I’m getting a little carried away with the amount I’m playing, even though some of them bore me. But I feel bad if I don’t go in and do the latest since there are so many people connected to me just so they can have a good amount of neighbours in their own games – they need me sending gifts :)

The latest update for me is that I’ve been off work for a few weeks and probably don’t go back for a couple more weeks. I had gone back to work after the brain tumour news. I think I was there for about a week and a half when one day I didn’t feel good, called my snookey to come take me home and then laid down underneath my desk. I didn’t want to put my head down on my desk cuz I thought it would just bring people over and maybe throw out my back, so I thought it would be good to lay under my desk and just take it easy til he arrived.

That was the biggest mistake ever. People on my floor saw me, came over to ask how I was. I told them I wasn’t feeling good and was just waiting to go home. Well then they called the first aid team (those who’ve had the same training I’ve had) and they came over to check my pulse (which they couldn’t find – not trained too well), leave me with a sitter (this loudmouth girl at work who I don’t like too much) and call an ambulance. I told them not to call an ambulance but they did anyway.

The ambulance arrived and did all their tests, including checking pulse, blood pressure, and sticking my finger for a blood test. I don’t know that they found anything wrong but they were going to whisk me off to the hospital.

I refused to go with them. And during that time my snookey arrived to pick me up. Since the ambulance was there, he told me to go with the ambulance. I guess he was scared that something was seriously wrong with me again, but, me being the person that I am, still refused to go in the ambulance. Luckily the ambulance said they couldn’t kidnap me, so I told my snookey to take me home where I took it easy for the afternoon.

In the meantime the HR department emailed me to tell me that this company they deal with to deal with employees and any bad health would be contacting me. They also sent me forms that I’d have to have a doctor fill out before I went back to work.

So I made a doctor’s appointment with my ‘family’ doctor… one who I see fairly often but she was no family doctor to me, just a doctor in a clinic where I would go now and then. I knew she wouldn’t be able to fill out these forms cuz WTF did she know about this brain tumour stuff? Nothing.

I went to see her, she said she’d order all the reports from the hospital and then she might be able to fill out the forms since my doctor’s appointment with the other neurologist who found out about the tumour (and took my driver’s license) is not until September something, after he’s returned from vacation.

So she thinks the medical reports will arrive sometime this week, so that says to me that I’ll see her some time next week and then I guess go back to work the week after.

It seems to be a crazy time for me, although I have gotten quite used to being home. I have lots more work to do while I’m home… making jewellery and getting all the jewellery ready for a show I’m doing in September, but I could also clean up the computer room which is the biggest mess in the house with paperwork everywhere along with beads and magazines and half-finished stuff that I’ve already made.

I’m concerned that when I get back to work they may be planning on getting rid of me. If so, I’m going to have to contact a lawyer to see that they’re giving me enough money since I can’t see a lot of other people hiring me, especially if I have to tell them I have a brain tumour.

So I guess I’ll have to write an update when it happens. I had the MRI+GAD scan on Friday and let me tell you, you better hope you never have to have that on your head. That’s the worst kind of test I’ve ever had. While they put in earplugs and flaps over your ear it doesn’t matter. You still have a really loud shitload of different sounds going through your head and I think it lasts at least half an hour. I’m hoping they don’t have to do this on a regular basis to check to see if the tumour has grown. What about an x-ray? They’re nice and quiet.